Center of Congenital Malformations

Center of congenital malformations encompasses a multidisciplinary team of highly specialised doctors from fields of paediatric surgery, neonatology, genetics, gastroenterology, radiology and others. It is a part of Coordinating Center for Rare Diseases at Vilnius University Hospital Santaros Klinikos (VUH SK).

VUH SK is one of the two main tertiary level University Hospitals in Lithuania encompassing all the main medical specialties and ensuring multidisciplinary and often individualized care for patients with congenital anomalies. VUH SK, being the only institution in the country having capabilities to provide etiological diagnostics of a vast range of rare genetic congenital malformations/ intellectual disabilities syndromes and one of the main institutions providing complex tertiary level treatments for patients with malformations ensures highly specialized healthcare services for the whole population of Lithuania in certain areas including most congenital malformations. Our congenital anomalies center not only provides prenatal and postnatal diagnostics, surgical treatment and long-term follow-up for these patients, but also serves as a coordinating and referring center.

Features

Our Center of congenital malformations is the largest centre in Lithuania and one of the largest amongst the Baltic states. Specialists, working at the centre, have the largest experience of treating congenital anomalies such as oesophageal atresia, in Lithuania. The centre plays a major role in gathering knowledge and expertise and ensuring provision of high-quality healthcare services for patients with rare congenital malformations at a regional and national level.

Establishment of the center has helped to bring together experienced healthcare specialists interested in rare diseases. Today, working in a multidisciplinary team allows antenatal diagnostics of diseases, provide comprehensive treatment and follow-up with patients. Modern diagnostic tests and surgical procedures, based on the latest recommendations are available in the center. Also, specialists in the center have accumulated the most experience in Lithuania in treating congenital malformations such as esophageal atresia. Healthcare specialists are using newest modern treatment methods and were the first in Lithuania to perform minimally invasive surgery procedures for neonates. Since 2020 Center of congenital malformations has been recognized internationally and became a affiliated member of European Reference Network ERNICA (more information in https://ern-ernica.eu/).

Surgeons A. Strumila ir P. Gurskas have performed first successful minimally invasive long gap esophageal atresia surgery – stage thoracoscopy.

International cooperation

The Center of Congenital Malformations is actively developing and maintaining international collaborations with foreign hospitals and universities. Multicenter international research projects are underway to improve knowledge of rare congenital developmental abnormalities and their treatment. The center is currently participating in a GlobalPaedSurg clinical trial under the supervision of King’s College Hospital (London, GB). International contacts are constantly being developed to improve diagnostic and treatment options.

The team members of the center regularly go on international internships and courses on the topics of rare congenital developmental anomalies.

Pediatric surgeons Rūta V. Dagilytė ir J. Červinskienė in the 5th International Conference on Oesophageal Atresia and 2nd Conference on Congenital Airway Abnormalities ir Rome, 2019

Pediatric surgeons A. Strumila, B. Vincel ir R. Dagilytė in the International Pediatric Colorectal Surgery Conference in Vienna, 2019 training practical skills of minimally invasive pediatric surgery with the pioneer of endoscopic treatment of esophageal atresia, pediatric surgeon S. Rotenberg

Publications and presentations

Strumila A, Verkauskas G, Dagilyte R- GlobalPaedSurg trail- straipsnis ruošiamas publikacijai.
Strumila A, Kazlauskas V, Pošiūnas G, Verkauskas G, Beiša V. Infantile hemangioma: Predicting proliferation by infrared thermography. Medicina (Kaunas). 2017;53(2):85-89.
Mačiulytė, R., Gurskas, P., Trainavičius, K. ir Kaupienė, M. 2017. Collis-Nissen gastroplasty and fundoplication method for the very long gap esophageal atresia in children. Lietuvos chirurgija. 16, 1 (kovo 2017), 66-70
Strumila A, Dagilytė RV, Beiša V. Recommendations and a guideline for referral of infantile haemangioma to tertiary centres. ACTA MEDICA LITUANICA. 2018. Vol. 25. No. 1. P. 38–44
Pečiulienė S., Tamulienė L, Liubšys A., et al. Extremely rare disease of neonate mimicking sepsis and necrotising enterocolitis. Journal of Pediatric and Neonatal Individualized Medicine. 2018; 7(2): 12‐13;
B.Gricienė, M.Petkelytė, A.Neverauskienė,L.Petkevičius . The establishment of local diagnostic reference levels for pediatric CT (1st European Congress of Medical Physics (ECMP), Athens 2016-09-04)
R. Dagilytė, A. Strumila, P. Gurskas, G. Verkauskas. Naujas diafragmos išvaržų gydymo protokolas. Ilgo tarpo stemplės atrezijos gydymo naujienos. Mokslinėje praktinėje konferencijoje „Aktualūs vaisiaus medicinos klausimai", 2019 m.
A. Strumila, P. Gurskas. Miniinvazyvios vaikų chirurgijos plėtra: tulžies latakai, užkrūčio liauka. Lietuvos Vaikų Chirurgų metinėje konferencijoje, 2019.
A. Strumila, R. Dagilytė, P. Gurskas “Ilgo tarpo stemplės atrezija: gydymas ir ilgalaikė priežiūra”. Mokslinėje konferencijoje “Pulmonologijos ir alergologijos ruduo 2019”.
A. Virbickaitė, K. Trainavičius, P. Gurskas, M. Kaupienė Late surgical outcomes among patients with congenital diaphragmatic hernias (CDH). XIV Conference of the Baltic Association of Paediatric Surgeons (BAOPS), Tartu 2016.
R. Mačiulytė, K. Trainavičius, P. Gurskas. Collis-Nissen gastroplasty and fundoplication method for the very long gap esophageal atresia in children. XIV Conference of the Baltic Association of Paediatric Surgeons (BAOPS), Tartu 2016.
A. Strumila, P. Gurskas, K. Trainavičius, R. Mačiulytė. Rare cases of congenital diaphragmatic hernia XIV Conference of the Baltic Association of Paediatric Surgeons (BAOPS), Tartu 2016.
A. Virbickaitė, P. Gurskas, K. Trainavičius, M. Kaupienė, A. Strumila, S. Strupas. The correlation of defect size with survival rate of patients born with a congenital diaphragmatic hernia. XIV Conference of the Baltic Association of Paediatric Surgeons (BAOPS), Tartu 2016.
B.Gricienė, M.Petkelytė, A.Neverauskienė,L.Petkevičius . The establishment of local diagnostic reference levels for pediatric CT (1st European Congress of Medical Physics (ECMP), Athens 2016

News:

Last edited: 2021-11-26

Requisites

Vilnius University Hospital Santaros Klinikos
Santariskiu st. 2, 08406 Vilnius, Lithuania
Tel. (+370) 5 236 5000
Fax. (+370) 5 236 5111
Email. info@santa.lt
Company code: 124364561
VAT ID LT243645610
The company was registered in the State Enterprise Center of Registers 23 of March in 1998
Certificate no. 066081

Center of Congenital Malformations

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