Santariškių g. 2, 08661 Vilnius
tel. (+370) 5 236 5000
faks. (+370) 5 236 5111
info@santa.lt

      

SANTAROS KLINIKOS

VILNIAUS UNIVERSITETO LIGONINĖ

European Reference Networks

Spausdinti

According to the European Commission, there are about 30 million people living with rare diseases in the European Union. One of the goals of European Union is to provide high standard of care to all its citizens. Because of rare disease unique properties (rarity, variation, multiple system involvement, chronic nature, etc.), accomplishing this goal requires special initiatives and international collaboration..

European Reference Networks (ERNs) allow healthcare organizations across Europe to exchange their expertise. The aim of these networks is to improve patient with rare and complicated diseases, requiring special evaluation and treatment, care, to educate patients, patient families, society and healthcare professionals and to research the field of rare disorders.

There is a total of 24 ERNs, covering different clinical topics.

Europe referential networks

VUL Santaros Clinics rare disease competency centers are part of 8 different ERNs:

  • ERKNet (Coordinator in VUL Santaros Clinics prof. Augustina Jankauskienė)
    • Rare Kidney Diseases and Urogenital Formation Disorders competency center (adults and children)
  • ERN-RND (Coordinator in VUL Santaros Clinics prof. Algirdas Utkus)
    • Huntington disease competency center (adults and children)
  • EuroBloodNet (Coordinator in VUL Santaros Clinics prof. Laimonas Griškevičius)
    • Onco-hematological diseases competency center (adults)
    • Pediatric onco-hematology and surgical oncology competency center
    • Hemophilia and clotting disorders competency center (adults and children)
    • Amyloidosis competency center (adults)
  • MetabERN (Coordinator in VUL Santaros Clinics dr. Birutė Tumienė)
    • Inherited metabolic disease competency center (adults and children)
    • Lipidology competency center (adults and children)
  • ERN TRANSPLANT-CHILD (Coordinator in VUL Santaros Clinics prof. V.Tarutis)
    • Pediatric onco-hematology and surgical oncology competency center
    • Congenital heart defects competency center (adults and children)
  • eUROGEN (Coordinator in VUL Santaros Clinics doc. Gilvydas Verkauskas)
    • Rare urogenital diseases and complex disorders competency center
  • ITHACA (Coordinator in VUL Santaros Clinics dr. Aušra Matulevičienė)
    • Congenital developmental disorders and intellectual disability competency center (adults and children)

VUL Santaros Clinics rare disease competency centers are associated members of 7 ERNs:

  • ERN-BOND (Coordinator in VUL Santaros Clinics Šarūnas Bernotas)
    • Rare bone disease CC (children and adults)
  • ERN-CRANIO (Coordinator in VUL Santaros Clinics prof. Eugenijus Lesinskas)
    • Hearing Impairment and Hearing Implantation CC (children and adults)
  • EpiCare (Coordinator in VUL Santaros Clinics prof. Rūta Mameniškienė)
    • Rare epilepsy CC
  • ERNICA (Coordinator in VUL Santaros Clinics Arūnas Strumila)
  • ERN LUNG (Coordinator in VUL Santaros Clinics Elena Jurevičienė)
    • Adults rare pulmonary disease CC
    • Cystic Fibrosis (adults and children) CC
    • Pulmonary hypertension (adults and children) CC
  • ERN GUARD-Heart (Coordinator in VUL Santaros Clinics dr. Jūratė Barysienė)
    • Rare cardiovascular disease CC
  • ERN RITA (Coordinator in VUL Santaros Clinics dr. Skirmantė Rusonienė)
    • Rare Rheumatic and Auto-Inflammatory Diseases in Children CC

More information about ERNs in European Commission webpage. ERN informational booklet

 

alt

Atnaujinta 2019-11-11
Straipsnis parodytas: 2117 kartų(kartus)
 
Reklaminis skydelis
Reklaminis skydelis
Reklaminis skydelis
Reklaminis skydelis

Siekdami pagerinti Jūsų naršymo patirtį lankantis Santa.lt svetainėje, naudojame slapukus (angl. cookies) – tai nedidelės informacijos rinkmenos, kurias jūsų naudojamo įrenginio naršyklė priima iš svetainės kurioje lankotės. Surinkta informacija iš slapukų mums padeda efektyviau nustatyti naršymo įpročius, veiksmus bei nustatymus (pvz., kalbą, šrifto dydį ir kitas rodymo parinktis), o jums nereikia jų kaskart pasirinkti lankantis svetainėje ar naršant įvairiuose jos puslapiuose. Kad interneto svetainė veiktų, nebūtina leisti naudoti šiuos slapukus, bet sutikus su slapukų politika, naršyti jums bus paprasčiau. Išsamesnė informacija suteikiama AllAboutCookies.org. Galite ištrinti visus jau esančius jūsų kompiuteryje slapukus, o dauguma naršyklių nustatytos taip, kad slapukai nebūtų įrašomi jūsų įrenginyje. Su slapukais susijusi informacija nenaudojama jūsų tapatybei nustatyti ar kitais nei pirmiau aprašytais tikslais. Daugiau apie slapukus ir kaip jų atsisakyti - privatumo politikoje.

EU Cookie Directive plugin by www.channeldigital.co.uk